Meaningful outcomes for growing children with head or brain disorders at the Children’s Brain Centre in Rotterdam

The aim is to provide children with complex brain, head or sensory disorders with the best treatment aimed at optimal parti-cipation and quality of life. In the Child Brain Lab, we will playfully test children with different disorders on meaningful outcome measures. For this study, we conducted a survey among 30 children and/or their parents at the Child Brain Lab and/or Rijndam Child Rehabilitation. On a list of 56 possible outcomes/subjects, they could indicate which they considered important for their child and which they considered less important. In addition to the expertise of specialists and researchers, the input of children from the target group and their parents is essential. We will use the results of this study to reach consensus on the design of a measurement set of outcomes for the Child Brain Lab. In a next phase (outside this project) the selected measurements and tests will be carried out on all children in the Child Brain Lab. We will include the measurement results directly in consultations with parents and children, so that care and research are linked. The measurements will also be repeated over the years. In this way, we can better understand the development of children with brain, head or sense organ disorders and make connections between different disorders.