Implementing Scientific knowledge in clinical care
The long-running research program PERRIN (Pediatric Rehabilitation Research in The Netherlands) resulted in 100 scientific publications, generating valuable knowledge on the development of daily functioning and participation of children, youth and adults with CP aged 1-34 years. The knowledge addresses three themes: (1) developmental curves for different life areas such as communication, daily functioning and social functioning, (2) predictors of functioning later in life (3) lived experiences of young people with CP and parents of children with CP.
As partner of the PERRIN Consortium we collaborate in the PERRIN Next Step project, aiming to make this knowledge on the development of children and youth with CP in different life areas accessible and applicable for children, youth and adults with CP and their families, as well as to medical specialists and other professionals. Easy accessible knowledge enables more personal control and supports shared decision making.
At the end of the project there will be a website bundling all information, which is easy to navigate, providing information tailored to a specific subgroup, a specific life area and age-band. A working group, representing young adults with CP, Parents of children with CP, rehabilitation professionals of different disciplines and researchers will collaborate on the design of the website, which information will be presented and how.
Project collaborator
Period
1-9-2020 / 31-3-2023
Clinical focus area
pediatric rehabilitation
Photo made by Marieke de Lorijn